The Kissing Bug: A True Story of a Family, an Insect, and a Nation's Neglect of a Deadly Disease

The Kissing Bug: A True Story of a Family, an Insect, and a Nation's Neglect of a Deadly Disease

  • Downloads:3347
  • Type:Epub+TxT+PDF+Mobi
  • Create Date:2021-06-09 21:31:05
  • Update Date:2025-09-06
  • Status:finish
  • Author:Daisy Hernández
  • ISBN:1951142527
  • Environment:PC/Android/iPhone/iPad/Kindle

Summary

Growing up in a New Jersey factory town in the 1980s, Daisy Hernández believed that her aunt had become deathly ill from eating an apple。 No one in her family, in either the United States or Colombia, spoke of infectious diseases, and even into her thirties, she only knew that her aunt had died of a rare illness called Chagas。 But as Hernández dug deeper, she discovered that Chagas—or the kissing bug disease—is more prevalent in the United States than the Zika virus。 Today, more than three hundred thousand Americans have Chagas。


Why do some infectious diseases make headlines and others fall by the wayside? After her aunt’s death, Hernández begins searching for answers about who our nation chooses to take care of and who we ignore。 Crisscrossing the country, she interviews patients, epidemiologists, and even veterinarians with the Department of Defense。 She learns that outside of Latin America, the United States is the only country with the native insects—the “kissing bugs”—that carry the Chagas parasite。 She spends a night in southwest Texas hunting the dreaded bug with university researchers。 She also gets to know patients, like a mother whose premature baby was born infected with the parasite, his heart already damaged。 And she meets one cardiologist battling the disease in Los Angeles County with local volunteers。 


The Kissing Bug tells the story of how poverty, racism, and public policies have conspired to keep this disease hidden—and how the disease intersects with Hernández’s own identity as a niece, sister, and daughter; a queer woman; a writer and researcher; and a citizen of a country that is only beginning to address the harms caused by Chagas, and the dangers it poses。 A riveting and nuanced investigation into racial politics and for-profit healthcare in the United States, The Kissing Bug reveals the intimate history of a marginalized disease and connects us to the lives at the center of it all。 

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Reviews

Elyse Walters

Audiobook。。。narrator: Frank Corzo 6 hours and 55 minutes I thought this story was absolutely fascinating。。。。informative。。。。scary。。。haunting。。。relevant。。。。。engaging 。。。。both as a personal story and an eye opening social science intrigue-concern。 Taken right from the blurb: “The Kissing Bug” tell us the story of how poverty, racism, and public policies have conspired to keep this disease hidden — and how the disease intersects with Hernandez’s own identity as a niece, sister, and daughter; a queer Audiobook。。。narrator: Frank Corzo 6 hours and 55 minutes I thought this story was absolutely fascinating。。。。informative。。。。scary。。。haunting。。。relevant。。。。。engaging 。。。。both as a personal story and an eye opening social science intrigue-concern。 Taken right from the blurb: “The Kissing Bug” tell us the story of how poverty, racism, and public policies have conspired to keep this disease hidden — and how the disease intersects with Hernandez’s own identity as a niece, sister, and daughter; a queer woman; a writer and researcher; and a citizen of a country that is only beginning to address the farms caused by Chagas and the dangers it poses。 A riveting and nuanced investigation into radical politics and for-profit health care in the United States。 The Kissing Bug reveals the intimate history of a marginalized disease and connects as to the lives at the center of it all”。 *Chagas* 。。。。。 。。。。Chagas Disease also known as American trypanosomiasis, is a tropical parasite disease caused by Trypanosoma cruzi。 It is spread mostly by insects known as Triatominae, or kissing bugs。 The symptoms change over the course of the infection。 In the early stages, symptoms are typically either not present or mild, and may include fever, swollen lymph node‘s, headaches, or swelling at the site of the bite。 After 4 to 8 weeks, and treated individuals and or the chronic phase of the disease, which in most cases does not result in further symptoms。 Up to 45% of people with chronic infection develop heart disease 10-30 years after the initial illness, which can lead to heart failure。 Digestive complications, including an enlarged esophagus oran enlarged colon, may also occur after 21% of people, and after 10% of people may experience nerve damage。 Daisy tells the true story about her aunt who died of Chagas。 Honestly。。。I had a hardest time (ha。。。pun) > ‘digesting’ the detail descriptions of Daisy’s S L O W 。。。。。 brutal, painful, debilitating death。There had been many surgeries。 Her aunt had to have a colonoscopy bag。 Her aunt was a fighter 。。。。but, man, was she ever sick FOR YEARS。I’ll spare the details 。。。。But for any of us who share a less-than-perfect-working colon or any type of digestive problems。。。。reading parts of this book is grueling。 Thankfully 。。。。 Daisy moves on from digestive descriptions。。。。onto。。。。COCKROACHES。。。。I thought I’d die in this part of the family-history storytelling,too。。。。。Daisy and I shared something (in our early childhoods)。。。。we both watched our mother’s killing those black buggers。。。。My mother, and Daisy‘s mother, were on their hands and knees scrubbing, killing, cleaning for hours — trying to win the fight against the many cockroaches in our homes。 Daisy learned - in her family - at a young age - [silent mythology’s]。。。a insect ‘can’ kill。 Daisy I was told that her grandmother died when she was only two years of age。 Worms we’re coming out of her nose。。。 and then she died。 YUCK。。。。some of the early ‘true-story’ visuals were making me squirm quite uncomfortably。 Once Daisy moved into more documentation of ‘other’ factual stories— both in the United States, and in Latin America 。。。giving us statistics and information about the great epi divide 。。。。。I was no longer squirming over the breakdown of bodily function from rare horrific parasites diseases。。。。rather my understanding, sadness, and anger elevated (once again。。。only all the more clearly now) 。。。。。that our political policies HAVE CONSPIRED to try to hide the fact that when it comes to medical needs - equal rights and justice for all。。。。。there is a stark contrast between skin color, and economic status。 Towards the end of this book, Daisy gave many other examples where people have been harmed from our political leaders and ‘for-profit’ health care administrators ‘hiding truths’。 Because of what we’ve been living through with Covid-19, reading this book today 。。。。 a look at the effects of painful diseases 。。。。(bad enough) 。。。。and groups of people (black and brown), who live on the wrong side of the epi divide 。。。。。or in absolute poverty 。。。。or the wrong country。。。。we still have a lot to learn about our moral responsibility for the sufferings of others 。。。。Equal global exchange。。。。。colonization, politics, and economic justice is not just a good idea。。。。the time has come for equal resources。The political relationship between the United States and other countries has had a detrimental effect on the health of people around the globe。Kudos to Daisy Hernandez 。。。。。for this astonishing book 。。。。。 。。。。。much reads like page turning fiction。。。。(family love, family relationships, illness, family tales, coming of age, immigration)。。。。while also opening our eyes to the seriousness of these issues that affect all of us。 (much as we have witnessed with covid-19)。 。。。more

Lupita Reads

Such a remarkable book and story。 More to come later but definitely a favorite of the year - read this book!

Kisha

THE KISSING BUG: ⭐️⭐️🌗I found this to be hard to get through in parts and remarkably relatable in others。

Steve

While I enjoyed this book, I felt that it was too heavily weighted towards biography and could have explored the science in more detail。 I liked Daisy Hernández’s conversational tone and her very clear explanations of the science。 The use of actual cases was also very good, bringing the disease away from just stats and into real people。 I didn’t find the pacing consistent and there were times that I wanted her to get on with the story。 In addition, I found the writing to sometimes be overly-sent While I enjoyed this book, I felt that it was too heavily weighted towards biography and could have explored the science in more detail。 I liked Daisy Hernández’s conversational tone and her very clear explanations of the science。 The use of actual cases was also very good, bringing the disease away from just stats and into real people。 I didn’t find the pacing consistent and there were times that I wanted her to get on with the story。 In addition, I found the writing to sometimes be overly-sentimental and that the use of Spanish words was somewhat disruptive as sometimes she explained what they meant and sometimes less so。 I thought that the points on neglected tropical diseases and the “epi divide” were very well made。 Overall this book is well worth reading。 Thank you to Netgalley and Tin House for the advance reader copy。 。。。more

Anna Learn

Interesting & très timely exploration of Chagas (a widespread disease that "transcends" borders, very pandemic-era-appropriate)。 Drawing parallels to the current Covid situation, Hernández shows that who is affected by specific diseases & to what degree those people are able to get access to medical preventative care/treatment is a largely political issue。Enjoyed reading about what Hernández describes as her "family history" of the disease, especially in terms of her relationship to her Tía Dora Interesting & très timely exploration of Chagas (a widespread disease that "transcends" borders, very pandemic-era-appropriate)。 Drawing parallels to the current Covid situation, Hernández shows that who is affected by specific diseases & to what degree those people are able to get access to medical preventative care/treatment is a largely political issue。Enjoyed reading about what Hernández describes as her "family history" of the disease, especially in terms of her relationship to her Tía Dora。 But what felt like the bulk of the book, the "In Search of the Kissing Bug" section, read like a slew of expository essays/mini-articles on random scientific/historical elements of Chagas, which was not what I was in the mood for。 She is a reporter by training, and that's how her writing reads。 Some pretty funny parts smattered throughout: "I noticed a flask in the cooler labeled "LOL。" 'What does that stand for?' 'Lots of life,' he said, matter-of-fact" (132)。The endings of the final two chapters are nice--they stress the complexity of relationships with family。 。。。more